Hi Friends,
I hope that your day is going pleasantly well. We were out and about today, and saw a sign that made me stop and think.
It said ...
"Life is not about how to servive the storm,
but how to dance in the rain."
I need Gods provisions to survive the storm, but I am so glad He is teaching me to Dance in the rain. The girls and I took it literal, this afternoon as it rained, we went outside and danced in the rain... a reminder that He is in control. I am so glad He is and it is not left to me to figure out alone. I don't know how people who don't know God make it.
Several people have asked about Hannah and her issues. I am trying to figure out how to add it to the side bar, until then. I'll put it here. So here it is...
Hannah was born Dec. 29, 1999, she was 6'8 not to small, like Sarah who was 3'15oz. Hannah was a little early, but was good. The drs found a heart murmur quickly, but felt it would heal in time. We went home and waited. We saw a specialist in Birmingham at Childrens hospital and found out that she has pulmonary valve stonosis, too. She had her first heart surgery at 4 months old. She did well, and we weren't really concerned about it. Well the year she turned 5 she started getting sick a lot. Then by K5 she was sick every few weeks. She has fever every few days, then no fever for several days, then fever again. This goes on and on for 4 years. Even now it is every few days fever, then no fever. She has allergies, when a mesquito bites her she bruises and it swells up like a quarter. She has a nebulizer at home and does three treatments a day in the winter, spring and fall, and none in the summer. She has a sleep disorder, at night there is to much brain activity for her body to rest, she sleep walks, talks, and trys to take baths and eat. All while asleep. She has had migranes since she was 2, and has an immune disorder called hypogammagoblunemia -CVID, which is a primary immune disorder. She gets IVIG infusions every 4 weeks. She has psorisis, skin disorder, and the arthritis that goes with it, and she has ezema. And now the drs are 90% sure she has lukemia. They sent her blood work to Cinncinatti Childrens, and the machine was broken, so they resent it, and we should know by Sept. the results of that. So there is never a dull moment in our days.
But through it all we are confident that God has us in the palm of His hands. We are a little scared, but we know that this is just a small bump in the road compared to eternity.
I hope that ths helps, if you have any questions, please ask. I'll be glad to answer what I can.
Thank you for your prayers, we appreciate it very much.
Have a blessed day.
Much Love and Prayers,
Lori and girls