Hannah Update

Hi Friends,
We are home from Birmingham... Long day. Here is what we know.
Hannah's lung function test was at 82 this afternoon, so they gave her a breathing treatment, then retested her and it was 85. So we are going to do a am and pm treatment and see how she does, and do one in the early afternoon. Also theygot some of the results and she had a possitive IBD (irritable bowel disorder) and possitive crohn's disease. I am not sure that is right, I didn't know they were checking for that, but we will find out more next week, she sees the immunologist on the 9th. Hopefully we will find out more on the lukemia results. I am learning patience... (O:
So we know a little more, and have lots more questions.
We did see a friend as we were leaving, and that was like a hug from God. Also we were able to visit Children's Harbor, which the girls enjoyed so much, we played pool and watched them win at the crane game. It was fun for all of to relax and spend quiet time together before the dr visit.
Thank You for all the prayers, we felt them.
Much Love and prayers,
Lori and girls

emial

Hi all,
unfortunately someone hacked my email account. I have contacted yahoo, and set up a new email. please change it to

loriann12777@yahoo.com. Ignore ant email from loriann127 please.

We are off to Birmingham tomorrow. will update when I can.
Have a blessed week.
Much Love and prayers,
Lori

Contact info...

If you want to participate in the project you can email or snail mail us.

Hannah and Sarah Jordan
2668 Fisk Rd.
Montgomery, Alabama
36111

new email address...
loriann12777@yahoo.com

Thank you fpr the thoughts and prayers,
Much love and prayers,
Lori and girls

project.....

Hi Friends,
I am reposting this for those who may have missed it, and any newcommers who would like to help...
Hannah and Sarah are doing a project that will probably take most of the year, and can use the help of you all. There are several ways to help... They are collection pictures and info on each state and Canada and its provinces. They would love to have a picture of each states license plates, as well as any pictures on "Welcome to _________ (state name)ex: "Welcome to Alabama." Any city signs, Welcome to Montgomery, and such. Also any neat info or pictures, like State capital pictures... really anything. They want to make a big notebook to show all they learn.
Thanks for the help thus far, they have severasl pictures comming in.
Much Love and Prayers.
Lori and girls

Pray for Andrew

Hi Friends,
Please be in prayer for this precious family and their son Andrew.
There is a mass in his brain. Thet go for an MRI on Monday.
God holds us in the palm of His hands.
Much Love and Prayers, Lori

words to think on...

Hi Friends,
I hope that your day is going pleasantly well. We were out and about today, and saw a sign that made me stop and think.
It said ...

"Life is not about how to servive the storm,
but how to dance in the rain."

I need Gods provisions to survive the storm, but I am so glad He is teaching me to Dance in the rain. The girls and I took it literal, this afternoon as it rained, we went outside and danced in the rain... a reminder that He is in control. I am so glad He is and it is not left to me to figure out alone. I don't know how people who don't know God make it.

Several people have asked about Hannah and her issues. I am trying to figure out how to add it to the side bar, until then. I'll put it here. So here it is...

Hannah was born Dec. 29, 1999, she was 6'8 not to small, like Sarah who was 3'15oz. Hannah was a little early, but was good. The drs found a heart murmur quickly, but felt it would heal in time. We went home and waited. We saw a specialist in Birmingham at Childrens hospital and found out that she has pulmonary valve stonosis, too. She had her first heart surgery at 4 months old. She did well, and we weren't really concerned about it. Well the year she turned 5 she started getting sick a lot. Then by K5 she was sick every few weeks. She has fever every few days, then no fever for several days, then fever again. This goes on and on for 4 years. Even now it is every few days fever, then no fever. She has allergies, when a mesquito bites her she bruises and it swells up like a quarter. She has a nebulizer at home and does three treatments a day in the winter, spring and fall, and none in the summer. She has a sleep disorder, at night there is to much brain activity for her body to rest, she sleep walks, talks, and trys to take baths and eat. All while asleep. She has had migranes since she was 2, and has an immune disorder called hypogammagoblunemia -CVID, which is a primary immune disorder. She gets IVIG infusions every 4 weeks. She has psorisis, skin disorder, and the arthritis that goes with it, and she has ezema. And now the drs are 90% sure she has lukemia. They sent her blood work to Cinncinatti Childrens, and the machine was broken, so they resent it, and we should know by Sept. the results of that. So there is never a dull moment in our days.
But through it all we are confident that God has us in the palm of His hands. We are a little scared, but we know that this is just a small bump in the road compared to eternity.

I hope that ths helps, if you have any questions, please ask. I'll be glad to answer what I can.

Thank you for your prayers, we appreciate it very much.
Have a blessed day.
Much Love and Prayers,
Lori and girls

Happy girl

Hi Friends,

Thank you for "following" Hannahs blog. It made her so Happy to know that someone reads her and Sarah's blogs...

Much Love and Prayers,
Lori