Thursday, August 5, 2010

Infusion Therapy

Hi All,
Hannah had her infusion yesterday. It went well, and we had a good trip to Childrens and back. Thank you for all the prayers. We had a good day, and spent some time just Hannah and I. Hannah enjoyed passing out beanie babies to the kids she met, and she made a few new friends. We are thankful to God for a good trip, and bringing us home again safe.
Hannah will have to wear her face mask again, this does bother her, but it will be no time before she is comfortable with it. We do pray that no one makes fun of her, she has had a few problems in the past.
We hope that you all have a blessed week.
Much love and Prayers, Lori and girls

Saturday, July 31, 2010

They grow so fast!

They grow so fast! I don't know where the time goes. Before we know it, they will be grown...
Have a great week!
Much Love and Prayers,
Lori and girls


It has been a long summer for us. Several hospital visits here, and a few at Children's. Hopefully we can get back to normal. Hannah does have one more Children's visit on the 4th of Aug. but hopefully that will be it for a while. She is scheduled for an infusion at 9 and we should be home early afternoon. So for an update for anyone who wants to know. Hannah is now 10 and her health issues are:
Asthma and Allergies, heart murmur, pulmunary valve stenosis, migranes, psorisis, psoriatic arthritis, immunedificiency - all of her IG levels are really low, hypogammaglobulinemia - she will be getting immunoglobins by IV every 4 weeks begining again in August, and crohn's.
We are doing lots of vitimins, as well as fresh goats milk and the IVIG transfusions.
Hannah is such a trooper, she loves all her nurses and Dr's at Children's and she still takes beanie babbie to other children. She is an encouragement to others, but mostly to me. It makes me realize that the things that we sometimes feel are important really aren't as major as we think.
We are begining our homeschooling again soon, the girls are learning German this year, and I may try some spanish second semester, depending how they do on the German during the first semester. We have a friend who is in Germany right now, and the girls are looking forward to sending a letter to them.
We will be posting some new pictures soon, you will be suprised at how much the girls have grown lately. Sarah is going into 7th grade this year, and Hannah is going into 5th grade this year. They grow so fast!
We hope that you are all doing well.
Much love and Prayers, Lori and girls