Monday, August 31, 2009

Hannah Update

Hi Friends,
We are home from Birmingham... Long day. Here is what we know.
Hannah's lung function test was at 82 this afternoon, so they gave her a breathing treatment, then retested her and it was 85. So we are going to do a am and pm treatment and see how she does, and do one in the early afternoon. Also theygot some of the results and she had a possitive IBD (irritable bowel disorder) and possitive crohn's disease. I am not sure that is right, I didn't know they were checking for that, but we will find out more next week, she sees the immunologist on the 9th. Hopefully we will find out more on the lukemia results. I am learning patience... (O:
So we know a little more, and have lots more questions.
We did see a friend as we were leaving, and that was like a hug from God. Also we were able to visit Children's Harbor, which the girls enjoyed so much, we played pool and watched them win at the crane game. It was fun for all of to relax and spend quiet time together before the dr visit.
Thank You for all the prayers, we felt them.
Much Love and prayers,
Lori and girls

Sunday, August 30, 2009


Hi all,
unfortunately someone hacked my email account. I have contacted yahoo, and set up a new email. please change it to Ignore ant email from loriann127 please.

We are off to Birmingham tomorrow. will update when I can.
Have a blessed week.
Much Love and prayers,

Friday, August 28, 2009

Contact info...

If you want to participate in the project you can email or snail mail us.

Hannah and Sarah Jordan
2668 Fisk Rd.
Montgomery, Alabama

new email address...

Thank you fpr the thoughts and prayers,
Much love and prayers,
Lori and girls

Thursday, August 27, 2009


Hi Friends,
I am reposting this for those who may have missed it, and any newcommers who would like to help...
Hannah and Sarah are doing a project that will probably take most of the year, and can use the help of you all. There are several ways to help... They are collection pictures and info on each state and Canada and its provinces. They would love to have a picture of each states license plates, as well as any pictures on "Welcome to _________ (state name)ex: "Welcome to Alabama." Any city signs, Welcome to Montgomery, and such. Also any neat info or pictures, like State capital pictures... really anything. They want to make a big notebook to show all they learn.
Thanks for the help thus far, they have severasl pictures comming in.
Much Love and Prayers.
Lori and girls

Pray for Andrew

Hi Friends,
Please be in prayer for this precious family and their son Andrew.
There is a mass in his brain. Thet go for an MRI on Monday.
God holds us in the palm of His hands.
Much Love and Prayers, Lori

words to think on...

Hi Friends,
I hope that your day is going pleasantly well. We were out and about today, and saw a sign that made me stop and think.
It said ...

"Life is not about how to servive the storm,
but how to dance in the rain."

I need Gods provisions to survive the storm, but I am so glad He is teaching me to Dance in the rain. The girls and I took it literal, this afternoon as it rained, we went outside and danced in the rain... a reminder that He is in control. I am so glad He is and it is not left to me to figure out alone. I don't know how people who don't know God make it.

Several people have asked about Hannah and her issues. I am trying to figure out how to add it to the side bar, until then. I'll put it here. So here it is...

Hannah was born Dec. 29, 1999, she was 6'8 not to small, like Sarah who was 3'15oz. Hannah was a little early, but was good. The drs found a heart murmur quickly, but felt it would heal in time. We went home and waited. We saw a specialist in Birmingham at Childrens hospital and found out that she has pulmonary valve stonosis, too. She had her first heart surgery at 4 months old. She did well, and we weren't really concerned about it. Well the year she turned 5 she started getting sick a lot. Then by K5 she was sick every few weeks. She has fever every few days, then no fever for several days, then fever again. This goes on and on for 4 years. Even now it is every few days fever, then no fever. She has allergies, when a mesquito bites her she bruises and it swells up like a quarter. She has a nebulizer at home and does three treatments a day in the winter, spring and fall, and none in the summer. She has a sleep disorder, at night there is to much brain activity for her body to rest, she sleep walks, talks, and trys to take baths and eat. All while asleep. She has had migranes since she was 2, and has an immune disorder called hypogammagoblunemia -CVID, which is a primary immune disorder. She gets IVIG infusions every 4 weeks. She has psorisis, skin disorder, and the arthritis that goes with it, and she has ezema. And now the drs are 90% sure she has lukemia. They sent her blood work to Cinncinatti Childrens, and the machine was broken, so they resent it, and we should know by Sept. the results of that. So there is never a dull moment in our days.
But through it all we are confident that God has us in the palm of His hands. We are a little scared, but we know that this is just a small bump in the road compared to eternity.

I hope that ths helps, if you have any questions, please ask. I'll be glad to answer what I can.

Thank you for your prayers, we appreciate it very much.
Have a blessed day.
Much Love and Prayers,
Lori and girls

Wednesday, August 26, 2009

Happy girl

Hi Friends,

Thank you for "following" Hannahs blog. It made her so Happy to know that someone reads her and Sarah's blogs...

Much Love and Prayers,

School Project

Hi Friends,
As you can see Hannah isn't feeling her best. We love each and every one of you, thank you for all the prayers. Phil.1:3-11 says
"I thank my God upon every remembrance of you, Always in every prayer of mine for you all making request with joy, For your fellowship in the gospel from the first day until now; Being confident of this very thing, that he which hath begun a good work in you will perform [it] until the day of Jesus Christ: Even as it is meet for me to think this of you all, because I have you in my heart; inasmuch as both in my bonds, and in the defence and confirmation of the gospel, ye all are partakers of my grace.
For God is my record, how greatly I long after you all in the bowels of Jesus Christ. And this I pray, that your love may abound yet more and more in knowledge and [in] all judgment; That ye may approve things that are excellent; that ye may be sincere and without offence till the day of Christ; Being filled with the fruits of righteousness, which are by Jesus Christ, unto the glory and praise of God." KJV

Hannah and Sarah are doing a project that will probably take most of the year, and can use the help of you all. There are several ways to help... They are collection pictures and info on each state and Canada and its provinces. They would love to have a picture of each states license plates, as well as any pictures on "Welcome to _________ (state name)ex: "Welcome to Alabama." Any city signs, Welcome to Montgomery, and such. Also any neat info or pictures, like State capital pictures... really anything. They want to make a big notebook to show all they learn.

Also many people pray for us on a daily basis... Hannah wants to make a prayer wall. If you are willing, take a family picture, pets and all, and maybe a sign that says "Praying for Hannah" on it. Please include a note with names (first) and ages if you want, and city and state you are from.

We really appreciat your thoughts and prayers.
Have a blessed day.
Much Love and Prayers,
Lori and girls

Thirsty For Christ

Hi Friends,
What a blessed day we are having. I have been so encouraged today from Tracy over at "Thirsty For Him" She was talking about "Does it matter, it terms of reality" Keeping things done without grumbling and complaing... I tend to get upset that I am consistently picking up after everyone in our home. Then I was nudged by God, He reminded me that I am here for that. Keeping my home and the kids, dinner, laundry, al of it is for Christ. I do everything for the glory of God. He blessed me with this family for a reason. I have been reminded of that several times over the last few weeks. God has truley blessed us. I desire to be all I can for Him. I am just a vessel, I want to be a vessel of honour for Him.

On other fronts, homeschool is going great, Hannah is ok. I feel like a broken record sometimes, she has been feeling a bit under the weather lately, but no fever, and no other issues at this point. She has not had a good appitite, but is drinking boost, daily which helps keep her strength. I am so glad I can get her to drink it. She has not been up to going outside this week at all. We have basically been at home, inside since Sunday afternoon. Hopefully that will change some. I am trying to talk her into looking for ladybugs this afternoon. We will see.
Mia, Hannahs new puppy is doing well. Mia has already learned that if Hannah gets out of bed to wake me up. She is so cute, and loves to sleep right up next to Hannah, then when Hannah moves, Mia snuggles up closer to Hannah. I can sleep a little more easily.
Mia also has let Hannah dress her up some. She is so precious. I am so Thankful to God for bringing the perfect puppy to us.
Mia has trouble with her back legs, and with asthma, just like Hannah. God is so good!

We hope that You have a blessed week.
Much Love and Prayers,
Lori and girls

Sunday, August 23, 2009

Blessed Day

Hi Friends,
We hope that you have had a blessed day today, in GOd's house whereever you serve....
I never cease to be humbled by Gods blessings and provisions. What an Awesome God we serve!!!
We have had a great afternoon, Anna is doing good, Hannah feels great and has been helping daddy fix a fence today. Sarah and Anna and I had small naps, and are ready to go again. We strive to be vessels of Honour for Jesus on a daily basis, it has been nice to do that today, God brought a new family into our lives today, the mom wants to homeschool but has not learned how, or what to do to go about it. I was able to talk with her and help her out some. I am thankful God has opened a door for this to be done. I am glad He picked me to help, what a blessing.
We have a busy week, and pray that everyone has a good week ahead. God be with each of you today, and this week.
Much love and prayer's, Lori and girls

Saturday, August 22, 2009

Fun Filled day....

Hi Friends,
We pray you are having a good week. We are, and ready for a restful weekend with Daddy and the girls. Lonnie and I are going to help a neighbor repair a fence, she needs the security it provides.
It got me to thinking, she lives alone, no family here in town, they live in other states. She is older and she doesn't work, outside the home. Her sons are grown and married, her husband long passed. She has no one near to help her. We are all like that, we have families scatered here and there, sometimes we feel alone, with no one to help. God is there waiting to help us, if we just ask. He is there to provide all our needs, He is always with us. He is our security! Safe in the Palm of His hands.
I am secure in knowing that I am going to heaven one day. Are you secure in that knowledge? If not, I would be glad to tell you more and to show you the way.....

On another note, we were able to meet up with Deb, from "One Single Minute." today, what a blessing to spend time with such an encouraging friend. We visited a few local sites, Rosa Parks Museumn and some fountains that are nearby, and enjoyed spending time with the girls. They had fun in the fountains. I was so encouraged by her. The girls and I enjoyed the time out from school and all the busyness? of the week. Anna did pretty well while we were out, and slept and played and seemed to have a good time. Hannah is my navigator when we are out, and Sarah is my question asker. They saw the same things but took them in differently. Hannah remembers the order of events, whereas Sarah remembers that when she saw some of it, she had new questions about why things happened the way they did. I love that they have different learning styles, it makes teaching them so much fun. Hannah liked the fountain and getting wet the best, Sarah liked the history of it all. She then wanted to know when the museumn opened and who helped build it, and why they built it where the did. She spent time on the computer today learning more. Hannah on the other hand had more fun telling Daddy what she did, and that she was not as hot as we were because she was so soaked.
I think the day was a sucess.... Most of all we all had fun.
What are your plans this weekend? I hope that you enjoy time with friends and family, and take time to have lots of fun.
Have a blessed weekend.
Much Love and prayers,
Lori, Hannah and Sarah

Tuesday, August 18, 2009

Hello again

Hi friends, wow, have we missed all of you. We are back on track now, and had a good quiet summer. The girls are well, and ready for homeschool to start, we did start on Monday. They are both off to a great start.
Let me see, where has the time gone.... summer was good for Hannah and she has only a few small issues that will resolve over the next few weeks.
Hannah attended her first slumber party, and did happen to stay awake most of the night... thank you Anna for the build a bear party, and lots of fun. She did come home covered in bug bites, but they are healing nicely..... (O:
Fevers here and there, but nothing to major, and no hospital visits lately.... Thank you Jesus...
Sarah also has been doing well. growing like a weed. (O:
Not much else is new, just keeping busy and waiting on God's timing.
Upcoming appointments are:
Hannah, Aug. 31, Birmingham, we will be seeing a new pulmonary dr, so that will be interesting.
Hannah Sept. 11th, not sure if we will need to keep this, but pretty sure, we should find out the results of all of Hannah's latest test, and if she has lukemia or not. We are fully trusting God on this..... it is all in his devine hands.
We should also find out if we will continue the IVIG treatments.

We appreciate all your prayers. What a blessing!
Much love and Prayers
Lori and girls